Welcome friends, Romans, bumders. This is the spot for all my personal musings and random trash that doesn't fall into the fiction category. (Which the Starscream Collection is now for.)
Huzzah!
Now, go steal me fresh jams.
Welcome friends, Romans, bumders. This is the spot for all my personal musings and random trash that doesn't fall into the fiction category. (Which the Starscream Collection is now for.)
Huzzah!
Now, go steal me fresh jams.
So back in December I filmed a documentary with ProSieben TV for their program Galileo focusing on my Aquagenic Urticaria. Then in January they sent me to Berlin to see a specialist who diagnosed it as more Aquagenic Pruritis and wrote down some medication to pass to my GP for me to trial.
I was also contacted by a news agency who crammed the story all over the front pages on newspapers. (Egh!)
This afternoon I also featured on BBC WM and I chatted to the lovely Caroline Martin. (Interview in the first few minutes: http://www.bbc.co.uk/programmes/p01qqfjy )
The reason why I'm doing this is to raise awareness of the conditions as some folks (including health practitioners) still don't think it's a real condition and some just don't know anything about it.
I'll just go ahead and answer some FAQ for you to save time:
Q: "How do you drink?"
A: I don't drink as much as most people. I can't drink water and all liquids cause a reaction in my throat but some moreso than others. Milk and orange juice is less of a problem and I drink tea with half milk half tea.
Q: "How do you wash?"
A: Like anyone else. :P Just minimally. I can only have a bath every week or so at most and it's limited to a few minutes at a time. Other than that I use distilled witch-hazel.
Q: "How do you live since the body is made up of water?"
A: Hohoho. Yeah, well, I'd like to know that too. They still aren't sure what causes it, though some specialists think it may have something to do with mast cells or the bloods histamine levels.
Q: "How do you manage when it rains?"
A: I'm usually prepared. I have a coat with a big hood. But if I am caught out it's a case of putting up with the pain and itching until I can get home.
Q: "Is it just water?"
A: No. Any liquids. Blood, sweat, tears, saliva, oil, creams, you name it. Even things like mascara and eye pencils are a no no.